Brief Message: This website is an ongoing project for me, and my intentions are to offer as much information about Lyme Disease and living with Lyme Disease as I can. My email inbox currently has over 400 messages that I still need to sort through in hopes of finding more tidbits and doctors to add to this site. My final goal is to turn this into a non-profit organization, but right now it's only one person (me) doing everything and I am fighting my own battle with Lyme as it is. Please email me any information that I can add to this website to make it a true Lyme Disease Portal, and please check back often because I am determined to make this happen.
As of right now, the Lyme Project does not have an office or an 800# or anything like that since it's only me, but I will offer my cell phone number if anyone needs someone to talk to, I understand sometimes just having someone to talk to who understands can lift one's spirits. It would be best to call me in the evenings between 9:00pm and 11:00pm EST and any time on Saturday or Sunday -- I have unlimited minutes at those times. Since I only have a limited number of daytime minutes, I wouldn't be able to talk to someone during the weekday.
I am working on several projects right now for the Lyme Project, one being getting all the NPO paperwork together. I'm also trying to compile a list of celebrities that were born in or live in NJ, NY, or CT since those are the 3 worse states for Lyme, and I'm hoping the celebrities would be willing to put something in their fan club packet to help raise Lyme awareness. I also want to see what I can do about getting publicity and ongoing media attention so I can share my story and educate people and in turn help everyone who suffers with Lyme.
Please check back often, and if you want to volunteer to help me finish creating the Lyme Project and to start carrying out the plans of the Lyme Project, please get in touch with me, I could use all the help I can get!
Yours,
Kelly Spina
856-264-4848
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